First of all, the Buddy Walk was so wonderful. Our kids' school is just full of individuals who genuinely care about each member of our little community, and honestly, sometimes that's the best hug one can receive. We raised over 2,500.00 dollars for the DSAJ, and that was with minimal output from yours truly. Others took our cause and ran with it, which is just so inspiring. The DSAJ is one of those organizations that I just didn't care much about when Mae was first born. I had a baby and four other kids. This was not going to be my banner cause, you know? The reality of life is that if you don't work toward something you need, you don't get it. I had a lot of God elbowing His way into my life that first year and learned so much about Mae's needs. This organization has highlighted the gift that individuals with Down syndrome are to the community. To me, that's the key to stopping the eugenics movement; showcase the dignity and there is no way to argue for the destruction. We are so blessed to have the DSAJ.
As for the actual walk, well Miss Thing did her thing, which is to say, she was contrary. Mama had it all planned out. We left the house at 10:30. Mae slept on the way. We had fun, and some lunch, took pictures with the school cheerleaders, and met up with our teammates just before the walk. Mae fell asleep in the stroller. Wait. Oops, that wasn't the plan. Okay, Mae slept the first 1/2 mile. I picked her out of the stroller, as my hooligan children splashed in the freezing ocean. It was windy, so Mariana woke up. The last little bit I placed her on the beach and called her to walk to me. She stood there. She saw the cameras and she posed. She clapped. She waved her finger in the air. She laughed. She did not walk.
Here's the benefit to having a contrary child who also has a disability; you sort of delight in their individualistic behavior. The reality, when you hit the therapy circuit, or you are first telling people about your child's condition, is that suddenly your kid becomes that disability. That is to say, the disability becomes the most remarkable thing about the child. Obviously, hey, the therapists need to do their thing, and we have great ones that do highlight Mae's personality and delight in her. However, when you hear, "Oh, they are such nice people." a million times, or, "Yes that's very typical for kids with Down syndrome." you kind of delight in the non-conformist behaviors.