Monday, March 19, 2012

An Introduction..

We had our fifth child. We knew she was a girl, that she was oh-so-very breech and that I would need a c-section. We knew I was terrified of any kind of surgical procedure thanks to a root fear of anesthesia. We knew a lot, but we didn't know our daughter had Trisomy 21, aka Down's syndrome.

Now we know. Now we deal with it. Now we face the world with a whole new set of skills to discover and information to learn. Now we know that she, Mariana, isn't so much a Down's syndrome baby as our daughter who has Down's syndrome. We know that there is no formula to tell us what her level of function will be, nor is there any way to tell who she is until she lets us know. Just like the rest of our children, we have to get acquainted, observe the strengths and weaknesses, and find ways to live a life to our fullest potential, together.

13 comments:

  1. Congratulations on the birth of Mariana! Welcome to the T21 family. May the Lord give you His peace and the joy of discovering who little Mariana is as she works her way into your hearts!

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  2. Congratulations on your new baby girl! Your blog is being shared over on Facebook where we have a strong DS community. There are several Down Syndrome groups on there where I think you will find some wonderful new friends & learn new info. to help you if you have any questions. I myself didn't find out about my son having Down syndrome until he was 24hrs. old, then we rec'd. our confirmation when he was 1 week old so I know what you're going through. Just know you are not alone & you are starting on a wonderful journey you never knew you wanted to take. Again, Congratulations & God Bless!!!

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  3. Congratulations on your sweet blessing!

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  4. Congratulations!!! She will bring a whole new meaning to you as a mommy. You will be amazed at how quickly she will settle into her new role as a little sister; and you won't be able to imagine life without her. We have a 1 year old with DS and she has taught me more in this past year, than I have learned in my 34 years on earth. Best wishes and Congrats, again:)

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  5. Congratulations!!! If you haven't begun to see the magic in her bonus chromosome, you will! Your days and nights are going to be filled with more beauty and happiness than you could ever imagine! She will teach you all of the things about life that you thought you knew but didn't and she will strengthen you as a person and your family as a whole!!! Welcome to the Ds family!

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  6. Congratulations on the birth of your very precious baby - this little girl will teach you more im the future than you ever thought possible - she will teach you about love and what's important in life - im still learning from my daughter- she's taught me more than I've taught her - the beat advice I was given when she was small ,which has been invaluable,was stimulate,stimulate stimulate - enjoy your baby for now - she will prove to be a source of great joy x

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  7. Congratulations:) I'm sure there are mixed emotions at times but I promise you that everyday, you will be so very thankful for this blessing. It's a journey, and it's a fantastic one at that! My sweety, who is 6 is still teaching me that fact :).

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  8. Congrats! Your world will change because of her. It will change for the better. She will teach you things you never knew you needed to know, she will teach others compassion and she will teach you whats truly important. I reccommend noahsdad.com and noahsdad.com on facebook. ( when u are ready...)

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  9. Giving you a hug!

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  10. Congratulations on your new baby girl!!! You sound like you have an awesome attitude about it all!! Having a child with Down syndrome really does change your perspective about so many things...for the better!

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  11. Congratulations on your new baby! I saw a link to this on facebook. My daughter also has DS. She has taught us more in the past 2 years that I could have ever imagined. Our fears became our biggest blessing! Feel free to friend me on FB, Rachel Mesher Chidester.

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  12. First of all, welcome to the family! :) You are in for the ride of your life, but believe me, every second is well worth it!!!!! You will find a large extended family of other parents who are in all stages of their journeys....from mamas of unborn babies to mamas of adult kids with DS. These women are lifesavers, I swear. They make it possible to understand completely that whatever you're feeling at any given moment is something someone has experienced, they give GREAT advice, and they are truly an amazing support through pretty much anything your family faces. I am on Facebook. Please feel free to add me as a friend. :)

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  13. Congratulations on the birth of your fifth child :o) How very exciting! I also saw the link on FB! My daughter is 8 years old and has trisomy 14 (which is extremely rare). Prayers and good thoughts for you and your family as you begin you journey as a mother of five! :o) Rachael Strohm

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