This sentence has been like nails on a chalkboard to me lately, and honestly, given that it is said with generosity and appreciation for the value of people who have Down syndrome, I couldn't understand why. Then I read something where the author underlined that sometimes this can dismiss the humanity of a person with Down syndrome. "They" can be difficult, grouchy, uncooperative and down right nasty sometimes. Just like all of us. It's all those dimensions, the bad and the good, that make us fully human. Reducing a group of people to "sweetness" is stereotyping, and stereotyping discounts the wonderful intricate differences in the individual. But it's meant kindly, and I pray to God that I can accept those words graciously, even when Mariana is being a pill and a half.
Yup, Princess is getting on my nerves this week. It's the teething, the uncooperative behavior, the fury at not getting a bottle any longer. She's over me, you guys, and frankly, I'm over her. She also has been "picking" Scott over me when he gets home from work, which is not allowed. I get cranky, sweaty, ticked-off baby, and he gets cuddle-bug lover baby. But she can drink from that Cip-Kup and she is so very mobile and she's trying really hard to climb the steps. She's grown by leaps and bounds this week and I'm so happy to see this progress!
If you have a prenatal diagnosis, or just had a baby with Down syndrome, get a drink. Let's talk. Evaluations are like that dream that you show up for your SAT naked. The therapist starts asking you questions and you are all, "No. Wait, she kind of does this, but it's not really that, um, I don't know!" Also they ask completely ridiculous things like, "Does she use a spoon and fork?" and you, being a rational person who doesn't want to change your child's clothes and mop the floor every thirty seconds, panic and begin to believe your child's delays are because you are too selfish to spend your days cleaning up between meals. This week Mariana's speech therapist asked a bunch of questions that I answered, "No." and my husband answered, "Yes." I mean, it's like we don't live under the same roof or something. We both answered that she doesn't feed us or share food, or display any caring rituals on another person, but she began doing just that two days ago. Again, it's like winning the mega millions, without all the cash and long-lost relatives.